Vulvar Scarring Grading Scale for Lichen Sclerosus

Utilizing the vulvar disorders registry, protocol #STU00001056, the research team seeks to
analyze the medical record data, including standard of care vulvar photographs, of the vulvar
LS population at Northwestern Memorial Hospital (NMH) and the outpatient clinics of
Northwestern Medicine (NM). These photographs will be used to develop a vulvar scarring
grading scale for LS. The objective measurement of scarring severity in LS deidentified
standard-of-care patient photographs will be correlated with clinical examination findings to
assess validity of the grading scale. The development of an objective and standardized
grading scale will assist with the longitudinal evaluation of individual disease, assessment
of impact of therapy on scarring, and inform treatment modifications. Further, objective
grading of scarring would also provide the opportunity to search for potential correlation
between QoL scores and severity of clinical states in scarring dermatoses.

Inclusion Criteria:

- Patients seen at Northwestern Medicine Department of Dermatology and/or Department of
Obstetrics and Gynecology, who were seen by Dr. Bethanee Schlosser, and/or other
members of the Vulvar Mucosal Specialty Clinic team in any of their respective clinic
settings and underwent complete mucocutaneous examination.

- Patients with histologically confirmed vulvar LS.

Exclusion Criteria:

- Patients who refuse complete mucocutaneous examination.

- Patients who refuse recommended diagnostic procedures.

- Pregnant women or prisoners.