Understanding Value in Metastatic Breast Cancer

The treating physician, PI or study coordinator will inform eligible MBC patients about the
study via a letter (Appendix B) during or prior to their regular clinic visits in a waiting
area. Prior to the survey administration, study coordinator will obtain all necessary
signatures on the ICF from interested study participants in the private clinic room or
infusion area. The survey (Appendix A) will consist of 37 survey questions, which should take
patients less than 30 minutes to complete during their regularly scheduled clinic visit.
Study participants will have the option of taking incomplete surveys home, completing, and
mailing it back to us using stamped, self-addressed envelopes provided during their clinic
visit. All consented participants will also be given the option to complete the survey over
the phone with a study coordinator. Participants will be requested to provide their
preferable times and days for a phone call with a coordinator. The study coordinator will
call the patient and administer the same survey that would be given during a clinic visit. If
participants prefer completing the survey in the clinic a research coordinator will remain in
the room and will verbally facilitate the completion of the survey. Participants will be
compensated in the form of merchandise at the time they agree to participate (the photo of
sample merchandise is attached). Surveys will be collected by the study coordinator and
stored in secure, locked rooms at the UAB Comprehensive Cancer Center, where the study
coordinators will double-key enter de-identified survey responses into an encrypted, password
protected, electronic database.

Inclusion Criteria:

- All female MBC patients 18 years of age and older who have received treatment within
the past two years at UAB

Exclusion Criteria:

- Non-English speakers, patients residing in nursing homes or receiving hospice care