Barriers to Care and QOL for CCCA Patients
| Status: | Completed |
|---|---|
| Conditions: | Dermatology, Dermatology |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 12/15/2017 |
| Start Date: | August 2016 |
| End Date: | September 2017 |
Barriers to Healthcare and Quality of Life for Central Centrifugal Cicatricial Alopecia Patients
The purpose of the current project is twofold; first to determine what personal, historical,
logistical, and environmental factors preclude women from obtaining medical care for CCCA
hair loss. Because damage from CCCA is irreversible, early identification and treatment is
paramount to limiting the negative ramifications of the disease. Second, to investigate how
CCCA hair loss, a common occurrence in the Black population, can be a significant
psychological impediment to lives of affected Black women. Based on previous research on the
psychosocial impact of generalized hair loss in Black women, it is fair to consider that CCCA
hair loss also leads to problems with self-esteem and participation in daily life activities.
This research, the first of its kind, will add to existing knowledge of CCCA by investigating
the quality of life and barriers to care of patients with this condition. The goal of this
study is to illuminate what stands in the way of secondary and tertiary prevention of CCCA
patients and tailor treatment strategies to address their needs. The results of this study
will be instrumental in modifying dermatology resident training, adding to existing
dermatology management guidelines, and even developing public health advocacy programming.
logistical, and environmental factors preclude women from obtaining medical care for CCCA
hair loss. Because damage from CCCA is irreversible, early identification and treatment is
paramount to limiting the negative ramifications of the disease. Second, to investigate how
CCCA hair loss, a common occurrence in the Black population, can be a significant
psychological impediment to lives of affected Black women. Based on previous research on the
psychosocial impact of generalized hair loss in Black women, it is fair to consider that CCCA
hair loss also leads to problems with self-esteem and participation in daily life activities.
This research, the first of its kind, will add to existing knowledge of CCCA by investigating
the quality of life and barriers to care of patients with this condition. The goal of this
study is to illuminate what stands in the way of secondary and tertiary prevention of CCCA
patients and tailor treatment strategies to address their needs. The results of this study
will be instrumental in modifying dermatology resident training, adding to existing
dermatology management guidelines, and even developing public health advocacy programming.
Inclusion Criteria:
- Evaluated in the Northwestern Dermatology Department between October 1, 2015 and
September 30, 2017.
- Evaluated by any faculty physician.
- Diagnosed with CCCA.
- Age 18 or older.
- All subjects must have given signed informed consent prior to participation in study.
Exclusion Criteria:
- Non-English speakers (interpreters not available)
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