Expanding Live Donor Kidney Transplantation Through Advocacy Training and Social Media



Status:Recruiting
Conditions:Renal Impairment / Chronic Kidney Disease, Renal Impairment / Chronic Kidney Disease
Therapuetic Areas:Nephrology / Urology
Healthy:No
Age Range:18 - Any
Updated:12/9/2018
Start Date:April 1, 2017
End Date:April 2022
Contact:Andrew Cameron, MD PhD
Email:acamero5@jhmi.edu
Phone:410-349-7240

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This pilot study will be a clinical trial to test the feasibility and effectiveness of an
educational intervention and a mobile health intervention in adults with end stage renal
disease (ESRD) who have not yet identified a potential live donor.

Transplant candidates are hesitant to discuss their illness and the difficulties associated
with dialysis, and are therefore reluctant to pursue live donor kidney transplant (LDKT). The
investigators will conduct a prospective 3-arm randomized controlled trial with two novel
interventions to increase live donation. Arm 1 includes LDC program and the Facebook app, Arm
2 includes just the Facebook app, and Arm 3 includes standard of care. The investigators
primary objective is to demonstrate the the effectiveness of these interventions in
increasing live donor transplantation rates for candidates with no prior potential live
donor.

Inclusion Criteria:

- Kidney transplant candidates aged≥18 added to the waitlist in the last year with no
potential live donors are eligible.

- If there is an individual willing to donate, but the candidate is unwilling to
consider this option or this particular individual, the candidate is eligible for the
trial and may still benefit from identification of new donors or increased comfort
accepting donation from others.

- Participants at Johns Hopkins University or University of Alabama must speak English.
Participants at Northwestern University must speak English or Spanish.

Exclusion Criteria:

- Candidates with live donors currently under evaluation for donation will be excluded.

- Those with a previous kidney transplant will be excluded
We found this trial at
2
sites
Evanston, Illinois 60208
Phone: 312-503-5563
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3400 N Charles St
Baltimore, Maryland 21205
410-516-8000
Phone: 410-349-7240
Johns Hopkins University The Johns Hopkins University opened in 1876, with the inauguration of its...
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