Specifying Interventions From the Sickle Cell Disease Implementation Consortium (SCDIC)



Status:Recruiting
Conditions:Anemia
Therapuetic Areas:Hematology
Healthy:No
Age Range:18 - Any
Updated:5/3/2018
Start Date:April 2, 2018
End Date:June 30, 2020
Contact:Ana Baumann, PhD
Email:abaumann@gwbmail.wustl.edu
Phone:314 935 3585

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Trial Summary
Trial Overview
Inclusion Criteria

The Implementation of Cognitive Screening and Educational Support to Improve Outcomes of Adolescents and Young Adults With Sickle Cell Disease: From Clinic to the Community and Back

The goal of this study is to specify the interventions, implementation strategies and control
conditions from the Sickle Cell Disease Implementation Consortium (SCDIC) using a
mixed-methods approach to study site materials and conduct semi-structured qualitative
interviews with site representatives (N=3 per site).

The long-term goal of this line of research is to identify the most effective components of
SCD interventions while also identifying effective implementation strategies informed by a
systematic and rigorous work done by the members of the SCDIC consortium to improve the
quality of life of people with SCD, a life-threatening hematological disorder. This study
aims to collect detailed information about the planned interventions, the implementation
strategies and the control conditions from each site.

Inclusion Criteria:

- three representatives of each of the SDIC sites: the Principal Investigator, and two
people nominated by the PI.

Exclusion Criteria:
We found this trial at
1
site
Washington University in St. Louis
Saint Louis, Missouri 63110
Phone: 314-935-3585
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Saint Louis, MO
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