Telehealth Allied Health Care With People Who Have Parkinson's Disease Living in Rural Nevada and Wyoming



Status:Recruiting
Conditions:Parkinsons Disease
Therapuetic Areas:Neurology
Healthy:No
Age Range:30 - Any
Updated:12/24/2017
Start Date:November 2, 2017
End Date:May 31, 2019
Contact:Kathleen Nagle, LPN
Email:kathleen.nagle@unlv.edu
Phone:7028951377

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Decreasing Health Disparities for Parkinson's Disease in Rural Communities: Assessing Feasibility of Coordinated Telehealth to Deliver Allied Health Care of Medication Management, Physical Therapy, and Speech Therapy

The investigators have developed a three-part allied health care intervention to be delivered
via telehealth. These interventions are usually provided face-to-face. Telehealth access to
healthcare is needed for people with Parkinson's disease living in rural locations, where
providers are sparse and long travel times are often not feasible because of weather
conditions, as well as the hallmark symptom of Parkinson's disease, movement disorders

Parkinson's Disease & Allied Health. Parkinson's disease (PD), the second most common
neurodegenerative disorder affecting more than a million people in the U.S., has no known
cause or cure. Persons with PD use prescription medications and behavioral interventions to
alleviate key problems such as walking, handling objects, and speaking. Individuals with PD,
accessing multidisciplinary allied health care intervention, have shown functional gains.
Without these ongoing, coordinated services, persons with PD become even more debilitated,
and this can hasten a decline in their quality of life.

Parkinson's Disease & Rurality. For those in rural areas, there is a critical health
disparity. People who live rurally contend with isolation. Wyoming and Nevada's population
density are ranked 49th and 42nd. In conjunction with this low population density and
mountainous terrain, individuals experience tremendous burdens including traveling long
distances to see health care providers with expertise in treating PD. These factors
contribute to the struggle of rural Americans with PD to manage this complicated, chronic
disease.

Parkinson's Disease & Telehealth. Telehealth technology has successfully allowed the delivery
of neurology care via "virtual house calls" with rural residents with PD. The virtual house
call model was determined to be feasible and promising for specialist care in underserved
rural areas. However, telehealth delivery of allied health care should also be examined.

Thus, the investigators propose an exploratory Phase 2 Behavioral Clinical Trial to determine
feasibility, safety, and signal of efficacy for telehealth coordinated allied health care for
persons with Parkinson's disease in rural Wyoming and Nevada. All 20 participants will be in
one arm receiving telehealth exercise, speech therapy, and medication management for eight
weeks.

Specific Aims:

For persons with Parkinson's disease in rural Wyoming and Nevada, the investigators will:

Aim 1 Test the feasibility of speech therapy, exercise therapy and medication management
coordinated through telehealth.

Aim 2 Determine the safety of the coordinated telehealth speech therapy, exercise therapy,
and medication management.

Aim 3 Measure signal of efficacy for telehealth outcomes

Inclusion Criteria:

- Speak English

- Are 30 years or older

- Have been diagnosed with Parkinson's Disease by a primary care provider

- Allow for us to communicate about you to your primary care provider (i.e., physician,
nurse practitioner, or physician assistant)

- Can stand alone for 10 min without holding on to anything

- Are taking at least one medication for Parkinson's Disease

- Are willing the participate in an 8-week study

- Will provide your physical address, your phone number, and an emergency contact's
phone number for us to use if an emergency occurs during your telehealth session.

Exclusion Criteria:

- Have dementia or problems following directions

- Have a medical diagnosis that would limit exercises

- have experienced a fall that required physician evaluation (Emergency Department,
urgent care or a hospitalization) within the past year

- Requires an assistive device or person (e.g., cane or walker) for walking, standing,
balancing

- Currently use a structured exercise regimen defined as participation in a regular
exercise program consisting of more than 60 minutes per week in total
We found this trial at
2
sites
Las Vegas, Nevada 89154
Phone: 702-895-1377
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Las Vegas, NV
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Laramie, Wyoming 82071
Principal Investigator: Mary Jo Cooley Hidecker, PhD
Phone: 702-895-1055
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Laramie, WY
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