SHARE (Sharing Goals and Preferences) Study
Status: | Recruiting |
---|---|
Healthy: | No |
Age Range: | 18 - Any |
Updated: | 3/21/2019 |
Start Date: | June 1, 2018 |
End Date: | January 31, 2024 |
Contact: | Elizabeth Schrier, BS |
Email: | Elizabeth_Schrier@dfci.harvard.edu |
Phone: | 617-582-7396 |
This research study is evaluating the usefulness of a video and questionnaire to help cancer
patients think about the goals of their care.
patients think about the goals of their care.
The investigators are conducting a study with patients from Dana Farber Cancer Institute
(DFCI) and DFCI-affiliate at St. Elizabeth's Hospital who are being treated for their cancer.
The purpose of the study is to test the implementation of a short video, a brief
questionnaire, and a wallet card designed to help patients understand and articulate their
goals and preferences when making decisions about their cancer treatment and communicate
these preferences to their clinicians.
The short video and brief questionnaire were developed to help patients with cancer think
about their goals of care and their treatment and information preferences and to prompt
discussions with their health care team about these preferences. The wallet card is designed
to help patients remember some key questions that may be useful as they make decisions about
future treatments
A pilot test will be completed to assess the feasibility and usability of the revised "More
Good Days" video, brief questionnaire and wallet card in helping seriously-ill cancer
patients think about what a good day means to them and test whether these tools can help
patients to identify and communicate their medical treatment preferences and goals with their
care team.
(DFCI) and DFCI-affiliate at St. Elizabeth's Hospital who are being treated for their cancer.
The purpose of the study is to test the implementation of a short video, a brief
questionnaire, and a wallet card designed to help patients understand and articulate their
goals and preferences when making decisions about their cancer treatment and communicate
these preferences to their clinicians.
The short video and brief questionnaire were developed to help patients with cancer think
about their goals of care and their treatment and information preferences and to prompt
discussions with their health care team about these preferences. The wallet card is designed
to help patients remember some key questions that may be useful as they make decisions about
future treatments
A pilot test will be completed to assess the feasibility and usability of the revised "More
Good Days" video, brief questionnaire and wallet card in helping seriously-ill cancer
patients think about what a good day means to them and test whether these tools can help
patients to identify and communicate their medical treatment preferences and goals with their
care team.
Inclusion Criteria:
- Patient who are receiving treatment at:
- DFCI in the thoracic oncology group
- DFCI-affiliated St. Elizabeth's Hospital and have progressed on 2nd line or
later-line systemic therapies (chemotherapy, immunotherapy, biological, or
targeted therapies)
- Clinicians' schedules to identify patients with metastatic cancers who are considering
or pursuing additional palliative therapy
Exclusion Criteria:
- Patients who are not interested in the study
- Patients of physicians who opt out of participating
- Patients whose physicians did not opt out, but whose physician does not think they are
well suited for the study
We found this trial at
3
sites
Boston, Massachusetts 02062
Principal Investigator: Christopher Lathan, MD
Phone: 617-632-6041
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450 Brookline Ave
Boston, Massachusetts 2215
Boston, Massachusetts 2215
617-632-3000
Principal Investigator: Alexi A Wright, MD
Phone: 617-632-6863
Dana-Farber Cancer Institute Since it’s founding in 1947, Dana-Farber has been committed to providing adults...
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Boston, Massachusetts 02115
Principal Investigator: Nancy L Keating, MD
Phone: 617-851-5916
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