MyChart in Patients With Inflammatory Bowel Disease.
| Status: | Completed |
|---|---|
| Conditions: | Irritable Bowel Syndrome (IBS), Gastrointestinal |
| Therapuetic Areas: | Gastroenterology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 1/30/2019 |
| Start Date: | November 15, 2017 |
| End Date: | January 20, 2019 |
Utility of MyChart for Improving Quality of Life and Patient Satisfaction in Patients With Inflammatory Bowel Disease.
This study will be the first to assess the use of an electronic health records patient portal
for patients with Inflammatory Bowel Disease. Patients with Inflammatory Bowel Disease (IBD),
have reduced quality of life, high rates of depression and anxiety, do not receive routine
preventative health maintenance (such as vaccines) at the same rate as the general public,
and have low adherence to medications. The investigators are seeking to understand whether an
electronic health record patient portal (EPIC's MyChart), can be utilized to improve quality
of life in this patient population.
for patients with Inflammatory Bowel Disease. Patients with Inflammatory Bowel Disease (IBD),
have reduced quality of life, high rates of depression and anxiety, do not receive routine
preventative health maintenance (such as vaccines) at the same rate as the general public,
and have low adherence to medications. The investigators are seeking to understand whether an
electronic health record patient portal (EPIC's MyChart), can be utilized to improve quality
of life in this patient population.
This study will be a single site randomized control trial.
Patients will be randomized into a control arm and intervention arm. At baseline the
investigators will obtain demographic data, quality of life measures, and satisfaction with
MyChart for those patients who are alrealy active portal users. The control arm will receive
periodic messages through MyChart that are not specific to IBD. The intervention arm will
receive more specific disease related information such as IBD educational information,
reminders to take their medications, and reminders to get vaccinated. The intervention arm
will also receive questionnaires that assess their mood (depression and anxiety). The
investigators will then inform the primary gastroenterologist for those patients in whom
mild, moderate or severe depression and anxiety is identified. At the end the study, in both
groups investigators will measure quality of life as measured by the Short Inflammatory Bowel
Disease Questionnaire (SIBDQ), a validated questionnaire for measuring health-related quality
of life in patients with Crohn's and Ulcerative Colitis. Secondary outcomes will include:
Satisfaction with Mychart as measured by a MyChart satisfaction survey, time to referral to
mental health provider for patients identified with mild, moderate, or severe depression, or
anxiety (PROMIS Depression and Anxiety Questionnaires), and Vaccine uptake (using a simple
yes/no questionnaire asking patients if they received Flu, PCV13 or PPSV23.
The findings of this study will allow future clinicians to better understand how a patient
portal can be utilized as a tool for the management of patients with IBD. This findings may
lead to increased physician and patient engagement with the MyChart patient portal.
Patients will be randomized into a control arm and intervention arm. At baseline the
investigators will obtain demographic data, quality of life measures, and satisfaction with
MyChart for those patients who are alrealy active portal users. The control arm will receive
periodic messages through MyChart that are not specific to IBD. The intervention arm will
receive more specific disease related information such as IBD educational information,
reminders to take their medications, and reminders to get vaccinated. The intervention arm
will also receive questionnaires that assess their mood (depression and anxiety). The
investigators will then inform the primary gastroenterologist for those patients in whom
mild, moderate or severe depression and anxiety is identified. At the end the study, in both
groups investigators will measure quality of life as measured by the Short Inflammatory Bowel
Disease Questionnaire (SIBDQ), a validated questionnaire for measuring health-related quality
of life in patients with Crohn's and Ulcerative Colitis. Secondary outcomes will include:
Satisfaction with Mychart as measured by a MyChart satisfaction survey, time to referral to
mental health provider for patients identified with mild, moderate, or severe depression, or
anxiety (PROMIS Depression and Anxiety Questionnaires), and Vaccine uptake (using a simple
yes/no questionnaire asking patients if they received Flu, PCV13 or PPSV23.
The findings of this study will allow future clinicians to better understand how a patient
portal can be utilized as a tool for the management of patients with IBD. This findings may
lead to increased physician and patient engagement with the MyChart patient portal.
Inclusion Criteria:
- Men and Women 18 years and older with a diagnosis of Inflammatory Bowel Disease
(Crohn's or Ulcerative Colitis, or Indeterminate Colitis by standard criteria) who are
scheduled for an upcoming appointment at the outpatient gastroenterology clinic or
infusion unit.
Exclusion Criteria:
- Non-English speaking patients
- Patients identified by their physicians as being too cognitively impaired to
participate
- Patients without access to computer with internet
- Patients not expected to be in the study area for the duration of the study such as
patients only seen for a one time second opinion
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