Parents as the Primary Sexuality Educators for Their Young Adults With Down Syndrome
| Status: | Completed |
|---|---|
| Conditions: | Other Indications |
| Therapuetic Areas: | Other |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 6/20/2018 |
| Start Date: | March 6, 2017 |
| End Date: | June 1, 2018 |
Parents as the Primary Sexuality Educators for Their Young Adults With Down Syndrome: The Effectiveness of a Family-based Training
By integrating sexuality and disability literatures, theories, and research methodologies,
this study aims to: 1) contribute to the limited knowledge professionals have of parents as
the primary sexuality educators; 2) create a resource for parents in order to be sexuality
educators for their young adults with I/DD; and 3) evaluate the effectiveness of the Home
B.A.S.E. for Developmental Disabilities Curriculum.
In order to meet the objectives the study seeks to answer the following questions:
1. What is the effectiveness of a sexuality education workshop for parents of young adults
with DS on improving the self-efficacy and attitudes around sexuality and healthy
relationships for young adults with DS as well as increase the parent-child
communication on sexuality topics?
2. What are parents' concerns that impact their ability to be the primary sexuality
educators for their young adults with DS? It is proposed that parent confidence and
comfort talking about sexuality topics with their young adult with Down syndrome will
increase thereby increasing the parent-child communication as a result of this study.
this study aims to: 1) contribute to the limited knowledge professionals have of parents as
the primary sexuality educators; 2) create a resource for parents in order to be sexuality
educators for their young adults with I/DD; and 3) evaluate the effectiveness of the Home
B.A.S.E. for Developmental Disabilities Curriculum.
In order to meet the objectives the study seeks to answer the following questions:
1. What is the effectiveness of a sexuality education workshop for parents of young adults
with DS on improving the self-efficacy and attitudes around sexuality and healthy
relationships for young adults with DS as well as increase the parent-child
communication on sexuality topics?
2. What are parents' concerns that impact their ability to be the primary sexuality
educators for their young adults with DS? It is proposed that parent confidence and
comfort talking about sexuality topics with their young adult with Down syndrome will
increase thereby increasing the parent-child communication as a result of this study.
Enrollment will begin and will end once 30 eligible subjects have been identified.
Anticipated duration is one year. Participants will enroll in one of the 4 different training
series. Each series will have 3 dates they must attend. Once enrolled and consent is
documented, eligible subject's will participate in the study for approximately three months.
Participants will be expected to attend 3 training sessions over a 4 week period, each are up
to 3 hours in length. There will be a follow-up post-survey one month after the last training
and an optional phone interview that will occur 2 months after the final training.
Participants will be compensated for their time with a $50 gift card once the final
post-survey has been received. The gift card will be mailed to the family. Data analysis will
begin once all trainings have been completed. Investigators anticipate completing the study,
including primary analyses, within two years from the date recruitment begins.
Anticipated duration is one year. Participants will enroll in one of the 4 different training
series. Each series will have 3 dates they must attend. Once enrolled and consent is
documented, eligible subject's will participate in the study for approximately three months.
Participants will be expected to attend 3 training sessions over a 4 week period, each are up
to 3 hours in length. There will be a follow-up post-survey one month after the last training
and an optional phone interview that will occur 2 months after the final training.
Participants will be compensated for their time with a $50 gift card once the final
post-survey has been received. The gift card will be mailed to the family. Data analysis will
begin once all trainings have been completed. Investigators anticipate completing the study,
including primary analyses, within two years from the date recruitment begins.
Inclusion Criteria:
- Parents of young adults with Down syndrome ages 20-30.
- Be able to communicate in English
Exclusion Criteria:
- Parents of young adults between the ages of 20 and 30 without Down syndrome
- Parents of individuals with Down syndrome younger than 20 or older than 30.
- Parents unable to attend 3 training sessions.
- Not fluent English communicators.
- Any vulnerable populations including pregnant women, neonates, prisoners, children,
cognitively impaired adults, or adults unable to consent
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