Psychosocial Functioning in Young Adults With Type 1 Diabetes
| Status: | Completed |
|---|---|
| Conditions: | Diabetes, Diabetes |
| Therapuetic Areas: | Endocrinology |
| Healthy: | No |
| Age Range: | 18 - 24 |
| Updated: | 2/3/2019 |
| Start Date: | August 2015 |
| End Date: | December 2018 |
Young Adults With Type 1 Diabetes: Psychosocial Influences in Heath Outcomes for Young Adults Transitioning to Adult Care Project
Background: The often studied psychosocial correlates that relate to health outcomes in
adolescents with Type 1 Diabetes (T1D) are factors such as self-efficacy, depression,
distress, quality of life, and adherence. These psychosocial factors are not well-studied
within a young adult (YA) population and the parents of YAs during the transition planning
phase. Impact: This study aids program development for pre-transfer educational interventions
to ensure more successful post-transfer health outcomes from both a patient and parent
perspective. Methods: This longitudinal study is designed to characterize the psychosocial
factors relevant for a population of YA with T1D. Data analyses of these psychosocial and
transition readiness variables allow for understanding of prospective health outcomes for
young adults with T1D during the transition process. Implications/Future Directions: From a
clinical perspective, the outcomes of this feasibility study will be two-fold: (1) establish
which of the clinical measures used in the study are related to meaningful health outcomes in
this young adult population in order to determine future standardized assessments in the
Diabetes Center and (2) determine which psychosocial constructs are relevant to health
outcomes to then more fully develop the Diabetes Center's transition program interventions to
improve functioning clinic-wide (e.g., group day sessions). Finally, it would be attractive
to various National Institutes of Diabetes and Digestive and Kidney Disorder (NIDDK) grant
mechanisms to identify the relevant psychosocial measures that assess the psychosocial
functioning of YA with diabetes after they transfer to adult care.
adolescents with Type 1 Diabetes (T1D) are factors such as self-efficacy, depression,
distress, quality of life, and adherence. These psychosocial factors are not well-studied
within a young adult (YA) population and the parents of YAs during the transition planning
phase. Impact: This study aids program development for pre-transfer educational interventions
to ensure more successful post-transfer health outcomes from both a patient and parent
perspective. Methods: This longitudinal study is designed to characterize the psychosocial
factors relevant for a population of YA with T1D. Data analyses of these psychosocial and
transition readiness variables allow for understanding of prospective health outcomes for
young adults with T1D during the transition process. Implications/Future Directions: From a
clinical perspective, the outcomes of this feasibility study will be two-fold: (1) establish
which of the clinical measures used in the study are related to meaningful health outcomes in
this young adult population in order to determine future standardized assessments in the
Diabetes Center and (2) determine which psychosocial constructs are relevant to health
outcomes to then more fully develop the Diabetes Center's transition program interventions to
improve functioning clinic-wide (e.g., group day sessions). Finally, it would be attractive
to various National Institutes of Diabetes and Digestive and Kidney Disorder (NIDDK) grant
mechanisms to identify the relevant psychosocial measures that assess the psychosocial
functioning of YA with diabetes after they transfer to adult care.
The purpose of this study is to assess how psychosocial functioning and transition readiness
(health knowledge and self-reported health-related skills) of young adults (aged 18-24) with
Type 1 Diabetes (T1D) and their parents impact health outcomes before they transition to
adult diabetes care. Transition of health care from pediatric to adult care systems is a
complex process and is often a challenge for young adults. These transition barriers lead to
gaps in healthcare, worsening of glycemic control, and increased hospitalizations/emergency
room utilization. Initial program development efforts to prepare young adults for transition
were developed at Cincinnati Children's Hospital Medical Center (CCHMC) based on best
practice recommendations in the literature. The psychosocial correlates of health outcomes in
this population are not well studied, though. Nor is it known whether these diabetes
education interventions impact transition to adult care over time. The investigators will
study how psychosocial factors (e.g., self-efficacy, depression, distress, quality of life,
adherence, and risky behaviors) impact health outcomes (e.g., glycemic control) over a one
year period, within the context of the current diabetes education transition program at
Cincinnati Children's Hospital Medical Center (CCHMC) for young adults with T1D and their
parents.
(health knowledge and self-reported health-related skills) of young adults (aged 18-24) with
Type 1 Diabetes (T1D) and their parents impact health outcomes before they transition to
adult diabetes care. Transition of health care from pediatric to adult care systems is a
complex process and is often a challenge for young adults. These transition barriers lead to
gaps in healthcare, worsening of glycemic control, and increased hospitalizations/emergency
room utilization. Initial program development efforts to prepare young adults for transition
were developed at Cincinnati Children's Hospital Medical Center (CCHMC) based on best
practice recommendations in the literature. The psychosocial correlates of health outcomes in
this population are not well studied, though. Nor is it known whether these diabetes
education interventions impact transition to adult care over time. The investigators will
study how psychosocial factors (e.g., self-efficacy, depression, distress, quality of life,
adherence, and risky behaviors) impact health outcomes (e.g., glycemic control) over a one
year period, within the context of the current diabetes education transition program at
Cincinnati Children's Hospital Medical Center (CCHMC) for young adults with T1D and their
parents.
Inclusion Criteria:
- Young Adults ages 18-24
- Current patients of the Cincinnati Children's Hospital Medical Center (CCHMC) Diabetes
Clinic
- Recently (< 4 months) completed the Readiness Assessment tool
- Planning to continue to receive diabetes services at CCHMC (i.e., not imminently being
transferring their diabetes care to an adult provider) for the next 12 months.
Exclusion Criteria:
- Co-existing diagnosis of mental retardation or pervasive developmental disorder
- Not fluent in the English language.
We found this trial at
1
site
3333 Burnet Avenue # Mlc3008
Cincinnati, Ohio 45229
Cincinnati, Ohio 45229
1-513-636-4200
Cincinnati Children's Hospital Medical Center Patients and families from across the region and around the...
Click here to add this to my saved trials
