Web-Based Communication Education for Breast Cancer Survivorship Care

This two-phase study develops and tests the usability and efficacy of a culturally relevant,
web-based patient education program, hereafter known as E-Talkcare, in improving Chinese
immigrant breast cancer survivors' competence, perceived control, and self-efficacy in cancer
care communication (intermediate outcomes), and patient-reported symptoms, adherence to
breast cancer survivorship care guidelines, and quality of life (distal outcomes) versus the
usual care control arm. In Phase I, community-based participatory research (CBPR) principles
will be used to develop the intervention to educate participants about culture and
communication by demonstrating how to ask for and verify information with doctors and use
personalized symptom reports, and by providing question prompt lists for doctor visits. In
Phase II, the intervention will be tested in a pilot randomized control trial (RCT). Using
cases from Los Angeles Cancer Surveillance Program, California Cancer Registry, Maryland
Cancer Registry, and clinics from California, 118 Chinese immigrant women (diagnosed with
stage 0-III breast cancer and 1-3 years post-diagnosis) will be enrolled and randomized to
either the E-Talkcare intervention or a usual care control arm. Participants will be
interviewed via telephone at baseline (i.e., pre-randomization), 3-, and 6-months
post-randomization.

Inclusion Criteria:

Eligible Chinese women

- ≥ age 18

- foreign-born speaking Mandarin and/or Cantonese,

- diagnosed with breast cancer at stage 0, I, II or III,

- 1-3 years post-diagnosis and completed primary treatment (surgery, radiation, and
chemotherapy); and

- no recurrence, and 6) internet access.

Exclusion Criteria:

- Women with other cancer types are ineligible due to different treatment complications.