ICU Experience Among Family Members of ICU Patients

Inclusion Criteria:

Family members of ICU patients are eligible for the study. We will enroll one study
participant per patient admitted to a study ICU (Shock Trauma or Respiratory ICU at
Intermountain Medical Center) who meets the following inclusion criteria:

- Participant can be a family member of a patient admitted to a study ICU for >24 hours
and >1 of the following:

- mechanical ventilation via endotracheal tube for ≥ 12 hours

- non-invasive ventilation (CPAP, BiPAP) for > 4 hours in a 24-hour period provided
for acute respiratory failure in an ICU (not for obstructive sleep apnea or other
stable use)

- high flow nasal cannula or face mask O2 with FiO2 ≥ 0.5 for ≥4 hours

- use of vasopressors for shock of any etiology for >1 hour

- Both participant and ICU patient must be adult (age >18 years of age)

- Participant must be able to read, speak, and write in English

- Participant must be enrolled within 72 hours of the patient's meeting mechanical
ventilation criteria

Participants who live with the patient will be accorded higher priority than those who do
not live with the patient because they are more likely to be involved as caregivers. The
preference would be for the participant to be the designated power of attorney; if there is
no designated power of attorney living with the patient, then the primary informal
caregiver (identified either by the patient or by the family) would be enrolled; if either
of these is not available, the default surrogate (defined in figure 1) would be enrolled.
If no one living with the patient meets these criteria, then family members and informal
caregivers not living with the patient will be screened for the study. The preference would
again be for first, the designated power of attorney, then a primary caregiver and a
default surrogate. An informal caregiver provides care without reimbursement.

Exclusion Criteria:

- Pregnant or breastfeeding females

- Prisoners

- Children (age <18 years of age)

- Known history of PTSD, dementia, or schizophrenia. Presence of these illnesses will be
per participant report of physician diagnosis and treatment

- If a patient has been transferred from another ICU after an ICU course greater than 24
hours, or if the patient has had a previous ICU or long term acute care (LTAC)
admission in the last 90 days, the family member or caregiver will be excluded.

- Patients admitted for hospice

- Participants who live more than 200 miles away or who have no specified domicile

- Non-English speaking