Mechanisms of Health Literacy and Information Accessibility in the Deaf
| Status: | Recruiting |
|---|---|
| Conditions: | Other Indications, Other Indications |
| Therapuetic Areas: | Other |
| Healthy: | No |
| Age Range: | 18 - 70 |
| Updated: | 3/23/2019 |
| Start Date: | December 9, 2016 |
| End Date: | August 30, 2020 |
| Contact: | Kelley Wyse, MA |
| Email: | kelwyse@med.umich.edu |
| Phone: | 734-418-0510 |
The purpose of this proposal is to examine the attitudes, knowledge, and skills related to
health information that influence health literacy among Deaf individuals.The study team will
also examine frequently overlooked potential predictors of health literacy, including
cognitive abilities, resilience, and self-efficacy. To achieve the study objectives,
researchers will conduct an explanatory sequential mixed methods design using extensive
quantitative data collection procedures, namely, cross-sectional surveys and measures that
will identify predictors and moderators of health literacy with Deaf and hearing subjects.
These results will inform the subsequent qualitative assessment using elicitation interviews
that will help explain the quantitative results, and elucidate how and why Deaf individuals
access and understand health information. A community advisory board consisting of Deaf
community members will provide oversight to the proposal that will be led by multiple Deaf
investigators, including the PI. The Deaf community, due to communication barriers, relative
social marginalization, and their reliance on visual learning, provides a unique insight into
how health information is distributed and disseminated visually. Findings may be applicable
to other individuals with hearing loss who navigate and cope with life more visually than the
typical hearing person. This will be critical to determine more accurately the effect of
visual learning and existing online health information on health literacy.
health information that influence health literacy among Deaf individuals.The study team will
also examine frequently overlooked potential predictors of health literacy, including
cognitive abilities, resilience, and self-efficacy. To achieve the study objectives,
researchers will conduct an explanatory sequential mixed methods design using extensive
quantitative data collection procedures, namely, cross-sectional surveys and measures that
will identify predictors and moderators of health literacy with Deaf and hearing subjects.
These results will inform the subsequent qualitative assessment using elicitation interviews
that will help explain the quantitative results, and elucidate how and why Deaf individuals
access and understand health information. A community advisory board consisting of Deaf
community members will provide oversight to the proposal that will be led by multiple Deaf
investigators, including the PI. The Deaf community, due to communication barriers, relative
social marginalization, and their reliance on visual learning, provides a unique insight into
how health information is distributed and disseminated visually. Findings may be applicable
to other individuals with hearing loss who navigate and cope with life more visually than the
typical hearing person. This will be critical to determine more accurately the effect of
visual learning and existing online health information on health literacy.
University of Michigan(UM) is the clinical coordinating center (CCC) and data coordinating
center (DCC) for this study. There are no subject recruitment or interaction will take place
at UM. CCC engages clinicians and the clinical research mission and provides the training and
professional development to ensure effective study by recruiting and maintaining the study
sites performed at the Hurley Medical Center at Flint, Michigan, The National Technical
Institute of Technology(NTID) at Rochester Institute of Technology in Rochester, New York,
and The Sinai Deaf Health(SDH)program in Chicago, Illinois including participates. Thus,
educating and training investigators, study coordinators, and other research staff to ensure
an ongoing quality improvement of research processes. DCC is highly invested in producing the
highest quality survey questionnaires for use with deaf ASL-users and hearing, English
speakers. The study team will only use the best possible ASL translations of the data
collection measures in order to best obtain accurate, high-quality research.
University of Michigan (UM) will function as the lead site, not as a performance site. UM
will oversee all three other sites and conduct quality checks with each site, assist with
training of the staff for standardization, and conduct data management/storage of
de-identified data along with analysis. Hard copies and identifiers will be maintained at
each site as per their approved IRB protocols.
The two primary objectives of this proposal are:
- To elucidate the role of information marginalization on health literacy in Deaf American
Sign Language (ASL) users
- To better understand the mechanisms of health literacy in this population so as to
identify viable targets for future health literacy intervention development. This
proposal is responsive to PAR-10-133's request for studies that assess mechanisms
underlying health literacy, including roles of cognition, culture, language fluency, and
information-seeking and interpretation ability in the deaf population and, how these may
differ from the hearing population.
A secondary objective is to assess how varying levels of hearing loss can affect individuals'
abilities to access and comprehend health information and their health literacy adequacy.
center (DCC) for this study. There are no subject recruitment or interaction will take place
at UM. CCC engages clinicians and the clinical research mission and provides the training and
professional development to ensure effective study by recruiting and maintaining the study
sites performed at the Hurley Medical Center at Flint, Michigan, The National Technical
Institute of Technology(NTID) at Rochester Institute of Technology in Rochester, New York,
and The Sinai Deaf Health(SDH)program in Chicago, Illinois including participates. Thus,
educating and training investigators, study coordinators, and other research staff to ensure
an ongoing quality improvement of research processes. DCC is highly invested in producing the
highest quality survey questionnaires for use with deaf ASL-users and hearing, English
speakers. The study team will only use the best possible ASL translations of the data
collection measures in order to best obtain accurate, high-quality research.
University of Michigan (UM) will function as the lead site, not as a performance site. UM
will oversee all three other sites and conduct quality checks with each site, assist with
training of the staff for standardization, and conduct data management/storage of
de-identified data along with analysis. Hard copies and identifiers will be maintained at
each site as per their approved IRB protocols.
The two primary objectives of this proposal are:
- To elucidate the role of information marginalization on health literacy in Deaf American
Sign Language (ASL) users
- To better understand the mechanisms of health literacy in this population so as to
identify viable targets for future health literacy intervention development. This
proposal is responsive to PAR-10-133's request for studies that assess mechanisms
underlying health literacy, including roles of cognition, culture, language fluency, and
information-seeking and interpretation ability in the deaf population and, how these may
differ from the hearing population.
A secondary objective is to assess how varying levels of hearing loss can affect individuals'
abilities to access and comprehend health information and their health literacy adequacy.
Inclusion Criteria:
Deaf American Sign Language Users:
- deaf persons who use sign language and live in Flint, Michigan, Rochester NY, and
Chicago, IL metropolitan areas.
Hearing, English speakers:
- hearing persons who speak fluent English and live in Flint, Michigan, Rochester NY, and
Chicago, IL metropolitan areas.
Exclusion Criteria:
- Those who have cognitive impairment (e.g., due to dementia, delirium or intoxication).
- Those who unable to consent to the study.
- Individuals with limited vision will be excluded if they are unable to effectively use
a PC (i.e., function vision at 20-200 or worse).
We found this trial at
3
sites
Rochester, New York 14623
Phone: 585-475-6700
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