A Study of Parent and Child Emotions in Fetal Alcohol Spectrum Disorder (FASD)
| Status: | Recruiting |
|---|---|
| Conditions: | Women's Studies |
| Therapuetic Areas: | Reproductive |
| Healthy: | No |
| Age Range: | 4 - 12 |
| Updated: | 8/31/2018 |
| Start Date: | August 13, 2018 |
| End Date: | February 28, 2021 |
| Contact: | Christie Petrenko |
| Email: | christie_petrenko@urmc.rochester.edu |
| Phone: | 585-275-2991 |
Parent Emotion Socialization and Child Emotion Regulation in FASD
The purpose of this study is to learn about the emotion regulation skills of children with
fetal alcohol spectrum disorders (FASD) and different strategies that may improve these
skills. This study is also testing whether a training program taught to caregivers is
helpful.
Children will be asked to:
- Complete a brief measure of verbal and nonverbal problem-solving skills.
- Play two computer games.
- Have their heart rate measured while completing a task that is designed to be mildly
disappointing. Two ECG pads are placed on the chest with a small recorder.
- Play or relax with study staff while you are finishing caregiver activities.
Caregivers will be asked to complete interviews and questionnaires about:
- the child's background, including any past stressful experiences
- the child's behavior and how s/he handles emotions
- caregiver views on the child's emotions and their own
- caregiver relationship with the child
- Stress caregivers experience as a parent
fetal alcohol spectrum disorders (FASD) and different strategies that may improve these
skills. This study is also testing whether a training program taught to caregivers is
helpful.
Children will be asked to:
- Complete a brief measure of verbal and nonverbal problem-solving skills.
- Play two computer games.
- Have their heart rate measured while completing a task that is designed to be mildly
disappointing. Two ECG pads are placed on the chest with a small recorder.
- Play or relax with study staff while you are finishing caregiver activities.
Caregivers will be asked to complete interviews and questionnaires about:
- the child's background, including any past stressful experiences
- the child's behavior and how s/he handles emotions
- caregiver views on the child's emotions and their own
- caregiver relationship with the child
- Stress caregivers experience as a parent
Inclusion Criteria:
Families will be eligible for the study if they:
- Have a child between the age of 4 and 12 with a formal diagnosis of an FASD based on
the Revised 2016 Hoyme criteria (Hoyme et al., 2016)
- The child is in some form of out of home care (e.g., adoptive, foster, relative, or
other legal guardian)
- The child has resided with the primary caregiver for at least a year and be expected
to remain in that placement for at least 6 months (study duration).
Exclusion Criteria:
- A history of other genetic, neurological, or significant medical conditions, traumatic
brain injury, serious psychiatric illness or disability that would preclude data
collection
- Child has a moderate to severe intellectual disability (IQ < 55)
- Child or caregiver has insufficient proficiency in English
- Caregiver is a biological parent of the child with FASD
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