Program to Improve Dental Care: Children With ASD

After providing consent and assent from applicable children, the researchers will administer
the Sensory Processing Measure to test for sensory processing difficulties. Those that meet
criteria on this assessment will then complete baseline testing. If the child does not score
as having sensory processing problems on the Sensory Processing Measure, the family will be
thanked for their time and withdrawn from the study. Their data will be destroyed and only
that they were an interested family that failed screening due to lack of sensory processing
problems recorded (no identifying information recorded). For those families that pass this
screen, the caregivers will complete the following study measures Vineland Adaptive Behavior
Scales, Dental Subscale of the Childrens Fear Survey, the Sensory Profile, the Screen for
Child Anxiety Related Disorders, and study occupational therapists will complete an
occupational performance evaluation (observing actual oral hygiene activities to assess skill
level and determine barriers and supports for performance, interviewing parents for oral
hygiene and dental visit history how they handle child's behavior that interferes with oral
hygiene and dental visit activities, and gathering information about what rewards motivate
the child using the Reinforcer Assessment for Individuals with Severe Disabilities. The oral
hygiene activities observations serve as baseline data and information for clinical treatment
planning, as well as research data. Information about parent reactions to child behaviors is
clinical data that is necessary for individualizing occupational therapy treatment. The
caregivers will be asked to videotape a typical oral hygiene session at home to be scored for
the child's behavior by the researchers. The children will then complete a standard of care
preventative dental visit (cleaning, X-rays, periodontal health check). The dental researcher
will record the Decayed, Missing, Filled Surfaces (DMFS) Index, the Simplified Oral Hygiene
Index, the Modified Gingival index from the Community Periodontal Index, and the child will
be administered the Wong-Baker Faces Scale to measure discomfort. The dentist will obtain a
saliva sample to test for bacteria associated with caries risk. The sample will be collected
by having the child spit or drool into a cup. The saliva is analyzed on-site using a kit.
That session will be videotaped for later scoring of behaviors. The dental research staff
will fill out the Frankl Behavioral Scale describing the dental visit. The children will be
scheduled for 8 sensory-based occupational therapy sessions, once per week, over 10 weeks.
These sessions will be geared towards developing skills to discriminate, modulate, and
integrate input from their multiple sensory systems, adapting their home environment and oral
hygiene tasks to provide greater structure and reducing noxious sensory stimulation, and
practicing of oral hygiene tasks using behavior learning techniques. By increasing their
ability to properly interpret sensory input, we are increasing their ability to adapt to and
respond to stimuli (self-regulation). Examples of activities that may be used include:
increased input to muscles and joints through yoga or other weight bearing activities; oral
desensitization for those that may have adverse responses (often specific textures); teaching
coping techniques to decrease anxiety when presented with perceived adverse stimuli. The
caregiver will be given a home program consisting of a sensory activity schedule everyday at
home. These activities are specifically chosen and placed into a program to provide input to
the sensory system that will help self-regulation. Activities can include: wall push-ups to
provide increased input to the muscles and joints; utilizing a vibrating toothbrush to
decrease oral sensitivity; warm baths; smelling specific scents. A visual schedule will be
given to parents to use during tooth brushing at home to aid the participant in completing
the task. These are typical occupational therapy services for children with life skill
difficulties due to sensory processing problems. At the last session, occupational therapy
research staff will complete study questionnaires. The occupational therapy sessions will
primarily take place at the Division of Occupational Therapy's Life Skills Clinic, but up to
2 sessions may occur at the child's home if the occupational therapist deems that providing
the therapy in the home would offer greater benefit to the child than all the session taking
place at the clinic. After the 8 sessions of occupational therapy, the caregiver will be
asked to videotape another typical oral hygiene session at home within 2 weeks of final
occupational therapy session.

Then, the child will return to the dentist office for a 2nd preventative dental visit within
1 month at which the level of plaque, gingivitis, caries, fear, and cooperativeness with the
dental procedures will be assessed. Two weeks before the follow-up dental appointment,
parents will be sent a social story, about what to expect from the dental visit, to read with
their child twice per day. At the 2nd dental visit, the teeth will be cleaned as well as
assessed, but no X-rays will be taken. At this visit the dental environment and procedures
will be modified to provide a better amount and type of sensory stimulation to the child.
Examples may include the use of a weighted apron for deep proprioceptive input, which can be
calming, using a head lamp rather than the typical dental light, providing headphones with
soothing sounds playing, etc. This visit will be videotaped and dental research staff and
caregivers will fill out study questionnaires as they did at baseline. The occupational
therapist will also re-evaluate the child on the study outcome measures, observe the child
tooth brushing and flossing, and interview the parent with the formal questionnaires and
semi-structured interview.

Six months later, the child will have a 3rd preventative dental visit (with modifications as
described above), which will be videotaped and with dental staff and caregivers filling out
study questionnaires. The teeth will be assessed and cleaned, but no x-rays taken consistent
with standard care procedures of x-rays only 1x/year. All dental visits will occur at the
pediatric dental clinic at the Noorda Oral Health Sciences building. At the 6 month dental
visit, parents will again be interviewed for changes in the ease of completing and quality of
daily hygiene routines and perceived changes in tolerance for preventative dental visits and
OT will again perform study outcome measures and observations with the child and caregiver.

If any dental caries are found during this period, they will be taken care of per standard of
care dental procedures. If a child is found to need major restorative dental procedures
during this study, he or she will be withdrawn from the study (although still offered
standard clinical care) as the noxious sensation associated with a lot of dental procedures
would confound the results of this study.

Inclusion Criteria:

1. aged 5-12

2. able to follow 1-step verbal directions

3. able to reliably answer simple yes/no questions

4. have sensory processing difficulties as indicated by atypical scores on the Sensory
Processing Measure [ref]

5. has difficulty completing oral hygiene and dental visits

6. has sufficient motor skills to brush own teeth

7. family is fluent in English

8. has a caregiver willing to adhere to home program

7) caregiver is willing to bring child to clinic 8 weekly occupational therapy clinic
sessions

Exclusion Criteria:

1. unable to communicate

2. unable to physically handle toothbrush to brush teeth

3. requires extensive restorative dental work or has had such work within the past 3
months

4. has braces, temporary orthodontic prosthesis (e.g., retainers)

5. Greater than mild uncorrected hearing or visual impairments

6. uncontrolled seizures

7. has additional other neurodevelopmental conditions other than ADHD and Anxiety