Incorporating Multidimensional Psychosocial Interventions Improves the Well-being of Individuals With Epilepsy
Status: | Recruiting |
---|---|
Conditions: | Neurology, Neurology, Epilepsy |
Therapuetic Areas: | Neurology, Other |
Healthy: | No |
Age Range: | 18 - 88 |
Updated: | 2/23/2019 |
Start Date: | June 6, 2018 |
End Date: | February 2021 |
Contact: | Ramon Edmundo D Bautista, MD |
Email: | ramon.bautista@jax.ufl.edu |
Phone: | 904-244-9190 |
The Epilepsy Wellness Center: Incorporating Multidimensional Self-management Psychosocial Interventions in Epilepsy Care Improves the Well-being of Individuals With Epilepsy: a Feasibility and Proof-of-concept Study
The purpose of this study is to incorporate multidimensional self-management programs into
the routine care of epilepsy patients. Consenting patients will enroll in one of four
interventions that help improve medication adherence, increase seizure awareness and
documentation, improve memory and deal with stress and depression.
the routine care of epilepsy patients. Consenting patients will enroll in one of four
interventions that help improve medication adherence, increase seizure awareness and
documentation, improve memory and deal with stress and depression.
Though tremendous advances have been made in the diagnosis and treatment of individuals with
epilepsy, much remains to be done when it comes to improving their psychosocial well-being.
Many individuals with epilepsy have difficulty adhering to treatment, documenting their
seizure types, coping with memory difficulties, dealing with stress, and suffer from
depression. These factors limit the quality of life of epilepsy patients and prevent them
from realizing their full potential.
Patients will enroll in one of four interventions that help improve medication adherence,
increase seizure awareness and documentation, improve memory and deal with stress and
depression. Patient assessments will be conducted before and after intervention to gauge the
efficacy of the programs.
The specific aims of this study are to assess the feasibility and patient acceptability of
incorporating multidimensional self-management and psychosocial interventions into routine
epileptic care, as well as, determine whether these incorporations improve self-management,
quality-of-life, and other measures of well-being.
epilepsy, much remains to be done when it comes to improving their psychosocial well-being.
Many individuals with epilepsy have difficulty adhering to treatment, documenting their
seizure types, coping with memory difficulties, dealing with stress, and suffer from
depression. These factors limit the quality of life of epilepsy patients and prevent them
from realizing their full potential.
Patients will enroll in one of four interventions that help improve medication adherence,
increase seizure awareness and documentation, improve memory and deal with stress and
depression. Patient assessments will be conducted before and after intervention to gauge the
efficacy of the programs.
The specific aims of this study are to assess the feasibility and patient acceptability of
incorporating multidimensional self-management and psychosocial interventions into routine
epileptic care, as well as, determine whether these incorporations improve self-management,
quality-of-life, and other measures of well-being.
Inclusion Criteria:
- Clinical diagnosis of epilepsy using established criteria
- Patient self-identified as own primary caregiver
- English fluency
- Ability to provide informed consent
- Ability to complete the study assessments
Exclusion Criteria:
- History of non-epileptic seizures
- History of cognitive impairments that prevents them from providing informed consent
and completing study assessments
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