Study of Quality of Life in Older vs. Younger Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation for Myelodysplastic Syndromes

Transplant recipients who have met the inclusion and exclusion criteria and from
participating study sites will be asked to complete an online consent and survey for the
study. This survey is the patient-reported outcomes survey and will be used to assess quality
of life. The survey results will then be compared by age group and by time post transplant,
between 6 months and a year post transplant, 1 year to 3 years post transplant, and 3 years
or more post transplant.

Inclusion Criteria:

In order to be eligible to participate on this study, an individual must meet all of the
following criteria:

1. Underwent an allogeneic HCT for MDS on the 10-CMSMDS-1 protocol

2. Prior consent to research and future contact by the CIBMTR

3. Ability to provide RCI BMT protocol 17-ePRO signed and dated informed consent form
(ICF)

4. Age ≥55 years at time of transplant

5. Fluent in English or Spanish

6. Greater than 6 months post-HCT

Exclusion Criteria:

An individual who meets any of the following criteria will be excluded from participation
on this study.

1. No access to an internet browser or email account

2. Within 6 months of first HCT for MDS on the 10-CMSMDS-1 protocol