Hidradenitis Suppurativa Mail Survey
| Status: | Enrolling by invitation |
|---|---|
| Conditions: | Dermatology, Dermatology |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 12/23/2018 |
| Start Date: | May 14, 2018 |
| End Date: | July 2020 |
Hidradenitis Suppurativa (HS), also known as "acne inversa," is a chronic dermatologic
disease affecting apocrine gland-bearing areas and presenting with symptoms ranging from
pustules and inflammatory nodules to draining sinuses, abscesses, and fistulae. The pain and
odorous lesions associated with HS contribute to its heightened impact on quality of life in
comparison to other diseases; it has been described as "one of the most distressing
conditions observed in dermatology." Though it is clear that HS has a significant impact on
quality of life, how this manifests remains poorly characterized. The aim of this study is to
characterize the quality of life impact of HS and to validate a tool for patients to
self-assess the severity of their condition.
disease affecting apocrine gland-bearing areas and presenting with symptoms ranging from
pustules and inflammatory nodules to draining sinuses, abscesses, and fistulae. The pain and
odorous lesions associated with HS contribute to its heightened impact on quality of life in
comparison to other diseases; it has been described as "one of the most distressing
conditions observed in dermatology." Though it is clear that HS has a significant impact on
quality of life, how this manifests remains poorly characterized. The aim of this study is to
characterize the quality of life impact of HS and to validate a tool for patients to
self-assess the severity of their condition.
Running a comprehensive study and asking patients what challenges they encounter in their
daily lives can shed light on the ways in which HS causes quality of life impairment. In this
study, the study team aims to identify the following: problems faced by patients with HS, the
rate of depression, the rate of stigmatization, the rate of fear of being accepted in
society, treatments that patients have tried (and which treatments seem to have worked best),
the rate of alternative treatment use, and the correlation of these factors with the severity
of disease.
daily lives can shed light on the ways in which HS causes quality of life impairment. In this
study, the study team aims to identify the following: problems faced by patients with HS, the
rate of depression, the rate of stigmatization, the rate of fear of being accepted in
society, treatments that patients have tried (and which treatments seem to have worked best),
the rate of alternative treatment use, and the correlation of these factors with the severity
of disease.
Inclusion Criteria:
- Patients diagnosed with Hidradenitis Suppurativa by a dermatologist at Wake Forest
Baptist Medical Center's dermatology clinic.
- Patients 18 years of age or older
Exclusion Criteria:
- Patients younger than 18 years of age
- Any patient who does not have a mailing address on file
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