Partners at Meals - Respite Care and Home (PAM)
| Status: | Active, not recruiting |
|---|---|
| Conditions: | Alzheimer Disease, Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 8/15/2018 |
| Start Date: | August 15, 2017 |
| End Date: | May 31, 2021 |
Mealtime Partnerships for People With Dementia in Respite Centers and at Home
The goal of this study is to test the efficacy of a mealtime intervention in respite care
centers for people with dementia and their caregivers. Mealtimes become more challenging as
dementia progresses causing nutritional and behavioral issues in the affected individuals.
Using a train-the-trainer program built on the Partners at Meals model, volunteers in respite
centers partner with caregivers and develop a mealtime plan that builds on the strengths of
the person with dementia, and develop a supportive environment for change. A tele-health
component is involved in the communication between the respite center volunteers/staff and
families. Recruitment is limited to people attending the particular respite centers.
centers for people with dementia and their caregivers. Mealtimes become more challenging as
dementia progresses causing nutritional and behavioral issues in the affected individuals.
Using a train-the-trainer program built on the Partners at Meals model, volunteers in respite
centers partner with caregivers and develop a mealtime plan that builds on the strengths of
the person with dementia, and develop a supportive environment for change. A tele-health
component is involved in the communication between the respite center volunteers/staff and
families. Recruitment is limited to people attending the particular respite centers.
The goal of this study is to test the efficacy of a mealtime intervention (Partners at Meals)
in respite care centers (RCCs) that provide a social model of care for people with dementia
living in the community and support for their caregivers. Largely staffed by long-time
volunteers, these centers support caregivers' ability to maintain their loved one in the
home. Traditionally, support for social activities and mealtime offered by the RCCs cannot be
extended to home. In this project, we will use a telehealth interface to provide consultation
to family caregivers in the context of home where problems arise.
Outcomes include improvements in: a) quality of life (QOL) and nutritional outcomes for
people with dementia (PWD) and QOL outcomes for family caregivers (CGs); b) self-efficacy
training outcomes for assessing and managing meals for the CGs and the RCC volunteers; and c)
sustainability outcomes as determined by directors of the RCCs. Two large RCCs with a total
of 5 sites of care in suburban and rural areas of SC will be the sites of this project.
in respite care centers (RCCs) that provide a social model of care for people with dementia
living in the community and support for their caregivers. Largely staffed by long-time
volunteers, these centers support caregivers' ability to maintain their loved one in the
home. Traditionally, support for social activities and mealtime offered by the RCCs cannot be
extended to home. In this project, we will use a telehealth interface to provide consultation
to family caregivers in the context of home where problems arise.
Outcomes include improvements in: a) quality of life (QOL) and nutritional outcomes for
people with dementia (PWD) and QOL outcomes for family caregivers (CGs); b) self-efficacy
training outcomes for assessing and managing meals for the CGs and the RCC volunteers; and c)
sustainability outcomes as determined by directors of the RCCs. Two large RCCs with a total
of 5 sites of care in suburban and rural areas of SC will be the sites of this project.
Inclusion Criteria:
- Persons with Dementia (PWD): aged ≥ 60 years; attending a participating respite care
center (RCC) at least once/week; living with or within the same property as caregiver
(CG); diagnosis of Alzheimer's disease or related dementia with mild to moderate stage
as demonstrated by the Functional Assessment Staging Scale (FAST) of 5 or greater and
a MMSE of 12 or above; absence of wasting disorders (e.g., HIV/AIDS, heart or renal
failure or COPD, end-stage cancer) ; some supervision required or dysfunctional
behavior present (e.g., redirection)
- Caregiver (CG): lives with or on same property as the PWD; provides 4 hours or more of
care/day; assists with ADLs including meals
- Volunteer: present at the RCC at least weekly (at least 4 hours/week); identify as
comfortable in the teacher/coach role, and demonstrate ability to use televideo and
photograph.
- Administrator: worked with the organization for at least 3 months and plans to be in
place for at least 9 more months.
Exclusion Criteria:
- Persons with Dementia (PWD): not receiving enteral feeding or active treatment by a
speech pathologist/therapist; not diagnosed with dysphagia as identified by caregiver
or on RCC Intake Sheet. Those enrolled in or qualifying for hospice will not be
included.
- Caregiver (CG); paid for services as caregiver; unable to speak or read English
- Volunteer: unable to read and speak English
- Administrator: plans to leave organization
We found this trial at
1
site
171 Ashley Avenue
Charleston, South Carolina 29425
Charleston, South Carolina 29425
843-792-1414
Medical University of South Carolina The Medical University of South Carolina (MUSC) has grown from...
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