Effect of Treatment Modality on Psychosocial Functioning of Survivors of Unilateral Retinoblastoma
| Status: | Enrolling by invitation |
|---|---|
| Healthy: | No |
| Age Range: | 5 - 17 |
| Updated: | 9/9/2018 |
| Start Date: | August 31, 2018 |
| End Date: | August 2020 |
The purpose of this study is to find out about the quality of life and health in patients who
had retinoblastoma in one eye (unilateral retinoblastoma), who either received treatment with
chemotherapy injected directly into an artery leading to the eye (intra-arterial
chemotherapy) or removal of the eye (enucleation). By quality of life, the investigators mean
how the participants are feeling about being satisfied with things in their life, including,
physical health, emotional health, and their ability to carry out daily activities. The
investigators want to see if either treatment option would affect quality of life
differently. The investigators hope that this information will help us provide better care to
future children with retinoblastoma and better follow-up care for survivors of
retinoblastoma.
had retinoblastoma in one eye (unilateral retinoblastoma), who either received treatment with
chemotherapy injected directly into an artery leading to the eye (intra-arterial
chemotherapy) or removal of the eye (enucleation). By quality of life, the investigators mean
how the participants are feeling about being satisfied with things in their life, including,
physical health, emotional health, and their ability to carry out daily activities. The
investigators want to see if either treatment option would affect quality of life
differently. The investigators hope that this information will help us provide better care to
future children with retinoblastoma and better follow-up care for survivors of
retinoblastoma.
Inclusion Criteria:
- Ability to speak and understand English or Spanish
- Diagnosis of unilateral retinoblastoma at any age
- Treatment of retinoblastoma between 2006 - 2017
- Patients must between the age of 5-17 years old
- At least 1 year since completion of all cancer-directed therapy
- Treatment with enucleation of the affected eye or intra-arterial chemotherapy
Parent of patient:
- Ability to speak and understand English or Spanish
- Ability to confirm that he or she is the parent of a child treated for unilateral
retinoblastoma who meets the eligibility criteria listed above
- Ability to provide informed consent
Exclusion Criteria:
- Patients, or parents of patients, treated with both enucleation and intra-arterial
chemotherapy are not eligible
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Memorial Sloan Kettering Cancer Center Memorial Sloan Kettering Cancer Center — the world's oldest and...
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