The Hospice Advanced Dementia Symptom Management and Quality of Life Trial
| Status: | Not yet recruiting |
|---|---|
| Conditions: | Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 50 - Any |
| Updated: | 1/13/2019 |
| Start Date: | March 2019 |
| End Date: | August 2019 |
| Contact: | Abraham Brody |
| Email: | abraham.brody@nyumc.org |
| Phone: | 212 992 7341 |
The Hospice Advanced Dementia Symptom Management and Quality of Life Trial (HAS-QOL)
Alzheimer's Disease and Related Disorders (dementia) are a group of serious life limiting
illness that cause significant challenges to our public health system, with significant
illness burden for both the person with dementia and the caregiver. At the end of life, over
230,000 persons with dementia annually are cared for in hospice, yet hospice agencies are ill
prepared to care for this population and often resort to inappropriate pharmacologic measures
such as antipsychotics that reduce quality of life rather than improve it. This study will
therefore through its two phases refine and then implement, using a pragmatic stepped wedge
trial design, the Dementia Symptom Management at Home Program Hospice Edition, with the goal
improving quality of care for the person with dementia and their caregiver, reducing
antipsychotic use, and increasing bereaved caregiver satisfaction in the hospice setting.
illness that cause significant challenges to our public health system, with significant
illness burden for both the person with dementia and the caregiver. At the end of life, over
230,000 persons with dementia annually are cared for in hospice, yet hospice agencies are ill
prepared to care for this population and often resort to inappropriate pharmacologic measures
such as antipsychotics that reduce quality of life rather than improve it. This study will
therefore through its two phases refine and then implement, using a pragmatic stepped wedge
trial design, the Dementia Symptom Management at Home Program Hospice Edition, with the goal
improving quality of care for the person with dementia and their caregiver, reducing
antipsychotic use, and increasing bereaved caregiver satisfaction in the hospice setting.
Inclusion Criteria:
- Must have dementia as primary diagnosis for admission to hospice
- Must be newly admitted to a participating hospice
- Must be 50 years or older
Clinicians:
- Must be a skilled clinician or home health aide who provides care through an eligible
home health agency
- Must be 18 years or older
Exclusion Criteria:
Persons with Dementia:
Clinicians:
We found this trial at
1
site
550 1st Ave
New York, New York 10016
New York, New York 10016
(212) 263-7300
Principal Investigator: Abraham Brody, PhD
Phone: 212-992-7341
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