mHealth Family Self-Management
| Status: | Recruiting |
|---|---|
| Healthy: | No |
| Age Range: | Any - 100 |
| Updated: | 11/3/2018 |
| Start Date: | October 1, 2018 |
| End Date: | March 31, 2021 |
| Contact: | Stacee Lerret, PhD |
| Email: | slerret@mcw.edu |
| Phone: | 414-266-3690 |
mHealth Family Self-Management Intervention for Parents of Transplanted Children
This innovative research will address a gap in the literature involving the evaluation of the
impact of an individualized family-centered mHealth application to enhance daily
post-discharge communication following pediatric transplant. This proposal lays the
foundation for future research with myFAMI (self-management intervention) at multiple
pediatric transplant centers and builds the science from which to consider post discharge
monitoring and decrease cost of care in other pediatric chronic illness populations.
impact of an individualized family-centered mHealth application to enhance daily
post-discharge communication following pediatric transplant. This proposal lays the
foundation for future research with myFAMI (self-management intervention) at multiple
pediatric transplant centers and builds the science from which to consider post discharge
monitoring and decrease cost of care in other pediatric chronic illness populations.
Inclusion Criteria:
Pediatric patients:
1. Has undergone a heart, kidney, or liver transplant being discharged home from the
hospital
2. Has two eligible family members available to answer questions about the patient
Family members will be eligible for participation upon meeting the following inclusion
criteria:
1. is English speaking (to date the instruments being used have been validated for
English speaking participants only)
2. is 18 years of age or older
3. has a pediatric family member (< 18 years old) who has undergone a heart, kidney, or
liver transplant being discharged home from the hospital.
Exclusion Criteria for the family members are:
1. presence of significant communication or cognitive impairment that would preclude
completion of questionnaires based on self-report; or
2. the pediatric family member has experienced a previous transplant based on self
report.
Participants unable to speak and read English will be excluded due to the lack of resources
to develop the app and communicate via FaceTime in different languages. We will recruit
family members from three types of transplant populations to allow for sufficient sample in
a limited time frame for this complex pediatric surgery and high-risk population.
We found this trial at
1
site
9000 W Wisconsin Ave #270
Milwaukee, Wisconsin 53226
Milwaukee, Wisconsin 53226
(414) 266-2000
Children's Hospital of Wisconsin Nothing matters more than our children. At Children's Hospital of Wisconsin,...
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