Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors

Status:	Recruiting
Conditions:	Renal Impairment / Chronic Kidney Disease, Gastrointestinal
Therapuetic Areas:	Gastroenterology, Nephrology / Urology
Healthy:	No
Age Range:	18 - Any
Updated:	1/16/2019
Start Date:	November 27, 2017
End Date:	November 27, 2022
Contact:	Andrew Cameron, MD PhD
Email:	donorapp@jhu.edu
Phone:	4432870134

This study utilizes a web-based application to help patients on the organ transplant waitlist
communicate patient's need for a living donor via social media and provide interested
potential donors the opportunity to engage with the evaluation process.

Barriers to identifying a live donor include lack of education and hesitance to initiate a
conversation about live donation. For these reasons, many transplant candidates are hesitant
to discuss candidate's illness and are therefore reluctant to pursue live donor
transplantation. The investigators hypothesize that utilization of social media to spread
awareness about candidate's illness and candidate's need for a live donor will enable many
transplant candidates to successfully identify live donors. In this study, participants will
use a novel web-based application, called the "Donor App", to create and share candidate's
story via Facebook and other social networks to assist in the search for a live donor.

Inclusion Criteria:

- At least 18 years of age

- On the kidney-only or liver-only transplant waiting list at a collaborating center

Exclusion Criteria:

- Younger than 18 years of age

- Not on the kidney or liver transplant waiting list

- On multiple organ transplant waiting lists

We found this trial at

sites

Johns Hopkins Hospital

1800 Orleans St.
Baltimore, Maryland 21287

410-955-5000