Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
| Status: | Recruiting |
|---|---|
| Conditions: | Renal Impairment / Chronic Kidney Disease, Gastrointestinal |
| Therapuetic Areas: | Gastroenterology, Nephrology / Urology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 1/16/2019 |
| Start Date: | November 27, 2017 |
| End Date: | November 27, 2022 |
| Contact: | Andrew Cameron, MD PhD |
| Email: | donorapp@jhu.edu |
| Phone: | 4432870134 |
This study utilizes a web-based application to help patients on the organ transplant waitlist
communicate patient's need for a living donor via social media and provide interested
potential donors the opportunity to engage with the evaluation process.
communicate patient's need for a living donor via social media and provide interested
potential donors the opportunity to engage with the evaluation process.
Barriers to identifying a live donor include lack of education and hesitance to initiate a
conversation about live donation. For these reasons, many transplant candidates are hesitant
to discuss candidate's illness and are therefore reluctant to pursue live donor
transplantation. The investigators hypothesize that utilization of social media to spread
awareness about candidate's illness and candidate's need for a live donor will enable many
transplant candidates to successfully identify live donors. In this study, participants will
use a novel web-based application, called the "Donor App", to create and share candidate's
story via Facebook and other social networks to assist in the search for a live donor.
conversation about live donation. For these reasons, many transplant candidates are hesitant
to discuss candidate's illness and are therefore reluctant to pursue live donor
transplantation. The investigators hypothesize that utilization of social media to spread
awareness about candidate's illness and candidate's need for a live donor will enable many
transplant candidates to successfully identify live donors. In this study, participants will
use a novel web-based application, called the "Donor App", to create and share candidate's
story via Facebook and other social networks to assist in the search for a live donor.
Inclusion Criteria:
- At least 18 years of age
- On the kidney-only or liver-only transplant waiting list at a collaborating center
Exclusion Criteria:
- Younger than 18 years of age
- Not on the kidney or liver transplant waiting list
- On multiple organ transplant waiting lists
We found this trial at
6
sites
Yale University Yale's roots can be traced back to the 1640s, when colonial clergymen led...
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Maine Medical Center One of the country's consistently highest rated hospitals is right in your...
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1800 Orleans St.
Baltimore, Maryland 21287
Baltimore, Maryland 21287
410-955-5000
Principal Investigator: Andrew Cameron, MD PhD
Phone: 443-287-0134
Johns Hopkins Hospital Patients are the focus of everything we do at The Johns Hopkins...
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Rush University Medical Center Rush University Medical Center encompasses a 664-bed hospital serving adults and...
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