Developing a Pain Identification and Communication Toolkit
| Status: | Not yet recruiting |
|---|---|
| Conditions: | Chronic Pain, Chronic Pain, Neurology |
| Therapuetic Areas: | Musculoskeletal, Neurology |
| Healthy: | No |
| Age Range: | 21 - 89 |
| Updated: | 2/27/2019 |
| Start Date: | August 2019 |
| End Date: | February 2021 |
| Contact: | Emily Petti, BA |
| Email: | emp2007@med.cornell.edu |
| Phone: | 212-746-7317 |
Developing a Pain Identification and Communication Toolkit for Family Caregivers of Persons With Dementia
The proposed research will develop, refine, and pilot test the Pain Identification and
Communication Toolkit (PICT), an intervention to help family caregivers of community-dwelling
PWD identify pain symptoms and communicate those symptoms to health care providers. Informed
by self-efficacy theory, PICT will include: a) training in administering an observational
assessment tool to identify pain in PWD, b) coaching in effective communication about PWD's
pain symptoms, c) future planning for steps to take when pain is detected, and d) updating
caregivers' skills through routine practice with the pain assessment tool. All components
will be vetted and iteratively field-tested with a sample of racially and ethnically diverse
caregivers of community-dwelling PWD and health care providers. A two-group pilot randomized
trial will examine the acceptability, feasibility, and preliminary impact of PICT on
caregivers' initiation of pain-related communication with health care providers.
Communication Toolkit (PICT), an intervention to help family caregivers of community-dwelling
PWD identify pain symptoms and communicate those symptoms to health care providers. Informed
by self-efficacy theory, PICT will include: a) training in administering an observational
assessment tool to identify pain in PWD, b) coaching in effective communication about PWD's
pain symptoms, c) future planning for steps to take when pain is detected, and d) updating
caregivers' skills through routine practice with the pain assessment tool. All components
will be vetted and iteratively field-tested with a sample of racially and ethnically diverse
caregivers of community-dwelling PWD and health care providers. A two-group pilot randomized
trial will examine the acceptability, feasibility, and preliminary impact of PICT on
caregivers' initiation of pain-related communication with health care providers.
Inclusion Criteria:
- Family caregiver
- Age 21 or older
- English speaking
- Cognitively intact
- Provides at least 8 hours of care per week to a person with dementia and pain
- Has provided care for at least 6 months
Exclusion Criteria:
- Paid caregiver
- Age 20 or younger
- Non-English speaking
- Cognitively impaired
- Does not provide at least 8 hours of care per week to a person with dementia who also
has a pain diagnosis
- Has not provided care for at least 6 months
- Currently enrolled in hospice
- The patient to whom the caregiver provides assistance is in enrolled in hospice
- Care recipient does not have dementia diagnosis or pain diagnosis
We found this trial at
1
site
New York, New York 10065
Principal Investigator: Cary Reid
Phone: 212-746-7317
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