Twitter Based Social Support for Hispanic and Black Dementia Caregivers



Status:Not yet recruiting
Conditions:Neurology, Psychiatric
Therapuetic Areas:Neurology, Psychiatry / Psychology
Healthy:No
Age Range:18 - Any
Updated:3/9/2019
Start Date:July 1, 2021
End Date:September 30, 2022
Contact:Sunmoo Yoon, PhD
Email:sy2102@cumc.columbia.edu
Phone:212-300-7081

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Using Twitter to Enhance the Social Support of Hispanic and Black Dementia Caregivers

The prevalence of dementia is higher in Hispanics and African Americans than non-Hispanic
Whites. Moreover, dementia caregivers often experience loneliness as well decreased health
status. The expansion of social media use among Hispanics and African Americans, particularly
Twitter - a short message service - offers great promise for improving social support. This
study aims to evaluate changes of discussion topics, sentiment and networking styles (i.e.,
number of followers) among anonymous followers of our two Twitter networks; the African
American/Black dementia caregiver group and the Hispanic dementia caregiver group.

The study will utilize Twitter networks to post a daily message for dementia caregivers for a
year, and set up a monthly group chat.

Inclusion Criteria:

- 18 years of age or older

- Black or Hispanic, living in the U.S. including the U.S. territories

- a dementia caregiver with any duration, able to speak English or Spanish/bilingual

- must agree to terms of conditions of use and privacy policy and rules of one of the
two dementia caregiver network (Hispanic @dcnh, Black @dcnaab), the Twitter user
agreement of the terms of service, Twitter privacy policy and Twitter rules including
intellectual property, violence, misconduct, abuse behavior, private information and
spam and security

- use a smartphone or a feature phone (i.e., a cell phone with text messaging)

Exclusion Criteria:

- do not have de-identified Twitter account, children, not a dementia family caregiver
We found this trial at
1
site
116th St and Broadway
New York, New York 10027
(212) 854-1754
Principal Investigator: Sunmoo Yoon, PhD
Phone: 212-300-7081
Columbia University In 1897, the university moved from Forty-ninth Street and Madison Avenue, where it...
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