FAmily CEntered (FACE) Advance Care Planning for Teens With Cancer

Condition The purpose of the FACE intervention is to facilitate conversations about EOL care
between adolescents and their legal guardians or surrogates in order to increase congruence
in treatment preferences, to decrease decisional conflict, while supporting plans and
actions, psychological adjustment and quality of life. This intervention will consist of
three 60 to 90-minute sessions in a dyadic format with a trained/certified interviewer. Each
session will be followed by a 15 minute assessment, using process measures to assess
participants' ratings of the quality of the communication with the facilitator and
satisfaction (negative and positive emotions in response to session) on a Likert scale. A
research assistant, not the facilitator, will conduct the immediate post evaluation sessions.
A Standard of Care comparison condition will also be assessed and measures administered at
the same time intervals: at baseline, one week intervals for three weeks for process measures
and Statement of Treatment Preferences, and at 3 month-post intervention follow-up.

Inclusion Criteria:

- Age ≥14.0 years and <21.0 years for adolescents at enrollment;

- Age ≥ 21.0 years for surrogates at enrollment;

- IQ > 70 or not known to be developmentally delayed;

- Depression score on Beck Depression Inventory, Second Edition (BDI-II) Total Score <
26;

- Primary language English

Exclusion Criteria:

- In foster care;

- Developmentally delayed;

- Suicidal or homicidal or psychotic at time of screening;

- Not understand or speak English; and

- Failure on mini mental status exam