Patient Portal and Navigation Program in Providing Information for Asian American Cancer Patients

PRIMARY OBJECTIVES:

I. Identify Asian American adults newly diagnosed with colorectal, liver, or lung cancer
using a population-based cancer registry.

II. Conduct outreach to these patients to let them know about the availability of information
on these cancers, the Patient Cancer OUtreach, Navigation, Technology and Support (COUNTS)
web portal, and the Patient COUNTS patient navigation program.

III. Provide patient navigation either virtually or in-person.

OUTLINE:

Patients attend focus groups to help develop patient portal and navigation program. Patients
use in-person navigation program. In phase II, patients use an online portal to access
navigation program and may choose to have online/?virtual? navigation support or in-person
navigation support. Patients also complete data collection and surveys over 15 minutes via
web portal at baseline, 3 months, and 6 months and user experience survey at end of program
participation.

Inclusion Criteria:

- FOR INTERVIEWS AND FOCUS GROUPS: Cancer patients: Self-identifies as Asian American,
lives in San Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has a
history of cancer of any kind

- FOR INTERVIEWS AND FOCUS GROUPS: Caregivers: any person who has provided care to an
Asian American cancer patient

- FOR INTERVIEWS AND FOCUS GROUPS: Health professionals: physicians and other health
professionals who provide care to Asian American patients with cancer

- FOR PILOT AND FULL IMPLEMENTATION: Self-identifies as Asian American, lives in San
Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has stage I-III
colorectal, lung, or liver cancer, has not yet undergone treatment

- FOR PILOT AND FULL IMPLEMENTATION: Is willing to stay in the study for six months

Exclusion Criteria:

- Any medical or psychological conditions precluding informed consent