Effectiveness of the Care Coordination, Assessment, and Responsive Engagement Program for Transition-aged Adolescents (t-CARE) With ASD



Status:Completed
Conditions:Neurology, Autism
Therapuetic Areas:Neurology, Psychiatry / Psychology
Healthy:No
Age Range:14 - 19
Updated:3/15/2019
Start Date:January 2016
End Date:April 9, 2018

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An analysis of data for adolescents and young adults diagnosed with Autism Spectrum Disorders
(ASDs) who are evaluated as part of the Care Coordination, Assessment, and Responsive
Engagement for transition-aged adolescents (t-CARE) program which replaced the former Autism
Life Care Model (ALCM), which was a clinical program implemented between Fall 2014 and April
2016. The individuals enrolled in the program will be administered a standardized assessment
battery during each visit with the care coordinator or study coordinator. The proposed study
will analyze data gathered during each of the assessment periods in order to check the
efficacy and viability of the protocol.

Current collaboration between individuals, families, and providers through in-person meetings
are extremely infrequent, costly, and occur most often when providers are intimately involved
as part of a multidisciplinary team in a single setting such as at a school. Often, little
information is transmitted between providers and/or school personnel in determining treatment
goals and interventions. Furthermore, the transmission of information is often provider to
provider or school personnel to provider, which excludes direct patient-input and lessens
transparency in decision making. In an effort to improve current care and therefore improve
successful adult transitions for adolescents with ASD, t-CARE is designed to mimic
multidisciplinary team meetings. These meetings are incredibly impactful as they include
direct individual and family involvement through facilitated information-sharing, while also
maintaining patient-centered care across multiple providers and complex systems of care.

Inclusion Criteria:

1. Between 14 and 19 years of age upon entry into t-CARE

2. A primary diagnosis of Asperger's Syndrome or autism, as indicated by the Social
Responsiveness Scale, Second Edition (SRS-2; Constantino & Gruber, 2012)

3. English as primary language spoken

4. Ability to self-report (i.e. understand and answer assessment questions written at a
third grade comprehension level) (self-report questions to be asked by study
coordinator)

Exclusion Criteria:

1. A significant language delay

2. Significant psychosis as indicated through a semi-structured interview
(Mini-International Neuropsychiatric Interview)
We found this trial at
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Hershey, Pennsylvania 17033
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Hershey, PA
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