Personal Web Page In Clinical Trial Participant Education

Research has shown that many clinical trial participants are confused about clinical trials.
Common participant misunderstandings include the idea of randomization, benefits to
participants' health, the proven nature of the study intervention, and failure to recognize
the primary purpose of the trial. There can sometimes be unintended miscommunication between
the study doctor and/or nursing staff and participants. Thus, there is a clear need to
identify ways to improve communication during clinical trials. The investigator's current
culture of web-based information presentation, whether it takes the form of PowerPoint
presentations, videos, websites, or audio tools, suggests that adding such technology to the
cancer research realm may improve a participant's clinical trial experience and possibly
improve participant understanding and safety while enrolled on a clinical trial. Video and
web-based tools in cancer research have the potential to transform clinical trial practice.

- Participants must be ≥ 18 years of age

- Participants must have an advanced or metastatic genitourinary malignancy (prostate or
kidney cancer)

- Participants must be consented to one of the selected clinical trials (see Appendix A)

- Participants must be able to read and write English

- Participants must have access to the internet at a minimum of once per week

- Participants must use the internet at a minimum of once per week

- Participants must feel at least somewhat confident in how to use the internet, as
determined by the eligibility questionnaire to be completed by the participant