A Pilot Study to Characterize the Household Impact of Locating Devices for Children With ASD Who Wander
| Status: | Recruiting |
|---|---|
| Conditions: | Neurology, Psychiatric, Autism |
| Therapuetic Areas: | Neurology, Psychiatry / Psychology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 3/27/2019 |
| Start Date: | January 15, 2019 |
| End Date: | April 1, 2019 |
| Contact: | Andrew Adesman, MD |
| Email: | aadesman@northwell.edu |
| Phone: | (516) 232 5229 |
A Prospective Pilot Study to Characterize the Impact on Families of Electronic Tracking Device Use by Children With Autism Spectrum Disorders Who Wander
This pilot study will obtain preliminary data about the impact of wearable electronic
tracking devices (ETDs) as an intervention for children with autism spectrum disorders (ASD)
who wander. The feasibility of all study procedures and the acceptability of the intervention
will be evaluated.
tracking devices (ETDs) as an intervention for children with autism spectrum disorders (ASD)
who wander. The feasibility of all study procedures and the acceptability of the intervention
will be evaluated.
Wandering, or elopement, is a life-threatening behavior that has been reported to occur in a
third of all children with autism spectrum disorders (ASD). Wearable electronic tracking
devices (ETDs) that are able to pinpoint a child's location have emerged as an appealing
intervention for families concerned about wandering risk. However, the impact of ETD use on
the families of children who wander has never been studied prospectively. In this pilot
study, parents will be provided with a commercially-available ETD to use for their child with
ASD for 6 weeks. Preliminary data will be obtained to evaluate the impact of ETD use on the
strain experienced by families due to their child's wandering behavior. The feasibility of
all study procedures will be assessed in preparation for a larger subsequent trial.
third of all children with autism spectrum disorders (ASD). Wearable electronic tracking
devices (ETDs) that are able to pinpoint a child's location have emerged as an appealing
intervention for families concerned about wandering risk. However, the impact of ETD use on
the families of children who wander has never been studied prospectively. In this pilot
study, parents will be provided with a commercially-available ETD to use for their child with
ASD for 6 weeks. Preliminary data will be obtained to evaluate the impact of ETD use on the
strain experienced by families due to their child's wandering behavior. The feasibility of
all study procedures will be assessed in preparation for a larger subsequent trial.
Inclusion Criteria:
- At least 18 years of age
- Parent of a child between the ages of 4 and 17 who currently has autism spectrum
disorder (ASD), was diagnosed with ASD by a professional, and has wandered at least
once in the preceding 3 months
- Currently lives in the United States
- Currently lives with child with ASD
- Has been living with child with ASD for at least 6 months
- Has reliable internet access to allow for completion of online questionnaires
Exclusion Criteria:
Current or past use of any electronic tracking device to address wandering behavior in the
child with ASD
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